Resources

List of Links

The Center for Autism Research (CAR) is a collaboration between the Children’s Hospital of Philadelphia and the University of Pennsylvania. CAR’s goals are to identify the underlying causes of ASD in order to develop precision treatments and support families by providing evidence-based resources and education.

The CAR Autism Roadmap is a website that provides families and providers with resources and information about ASD for children, youth and adults.

Simons Foundation (SFARI) is a scientific initiative with the mission of improving the understanding, diagnosis and treatment of autism spectrum disorder.

MyResults.Org is a website hosted by the Children’s Hospital of Philadelphia that provides information about genetic test results.

Autism Research Centre is situated within the School of Clinical Medicine in the Department of Psychiatry at the University of Cambridge. It brings together scientists working on autism from around the University of Cambridge. It also has major collaborations with other universities, and works closely with clinical and voluntary sector services.

Unique is a small charity supporting, informing, and networking with families living with a Rare Chromosome Disorders. On their website, you can find free guides on specific chromosome and gene disorders, including NRXN1/2p16.3 deletions.

The Color of Autism Foundation is a nonprofit committed to educating and assisting Black / African American families with Autistic children.

The Penn Autism Clinic serves children and adults who have or are suspected of having a diagnosis of autism, and who have health insurance through the University of Pennsylvania Health System.

The National Institute of Mental Health’s Caring for your Mental Heath page has helpful resources directed toward self-care, when to seek professional help, and what to do if you or someone you know is in crisis. Esta página también está disponible en español (This page is also available in Spanish).

PennBox for ASPE Material – restricted to the ASPE team